Most people know someone with diabetes. “My uncle has diabetes. At least it’s not too serious. With all the advancements, I hear it’s easy to control.” Knowing a friend or relative with diabetes (any kind) is very different than living with it yourself… or being a parent of a child with type 1 diabetes. [Read more…]
Every day. Wake up. Make sure child is breathing. Check blood sugar. Count carbs. Give insulin. Rinse, repeat… until bedtime. Yes, we do other things that “normal” people do. Yes, we live our lives. No, we don’t let type 1 diabetes control us. But after a while, this life can become exhausting. [Read more…]
When you think about T1D, it doesn’t often conjure up positive emotions. There is a lot of work and stress associated with the disease. Sometimes it gets overwhelming. There are so many aspects to learn about and it’s extremely involved. But there are some hidden treasures in the T1D world whose purpose is to help and brighten up your experience. Let me introduce you to The Insulin Gang. [Read more…]
We see it all the time: “My A1C went down to ___ from ___ in just 3 months!”, “Look at this Dexcom line! Low carb is the best!”, “My neighbor’s kid has diabetes too. They got it under control and now everything is fine, I don’t know why it’s so hard for you??” [Read more…]
A notice came through my mail slot today. “You are invited”… a potluck, a neighborhood BBQ. My neighbors are celebrating. You see, we live in a townhouse complex. We’ve lived in this place for almost 3 years now. There used to be a small (and I mean SMALL) playground area, but it was closed off almost immediately after we moved in because the structure was not safe. So, after a while of no access to a play area, some neighbors got together and worked on a community garden, picnic, and play area. It’s finally done, and everyone wants to celebrate and enjoy the rewards their hard work has earned. Sounds pretty nice, doesn’t it? Yet all I could think when reading the notice was… ugh. [Read more…]
Caregiver burnout. It’s very common for parents of type 1 diabetic children. We spend so much time planning, counting, worrying, that we often forget to take care of ourselves. It gets so bad that self-care can seem like an impossible hurdle, like you’ll never be able to care for both yourself and your child with T1D.
We had a family dinner recently. After the kids had gone to bed, the adults got to chatting. Someone brought up the topic of my son and his T1D. We mentioned that he’d been having a hard time coping lately. As we talked about how he is getting increasingly frustrated by his diabetes, one relative spoke up and said, “Well, I’d just tell him to get over it.” [Read more…]
Diabetes has become a part of our lives. Most of the time, it is a nuisance at the most. White noise in the background that we have gotten used to and don’t really notice anymore. But there are other times, times of unexplained highs or lows, times of sites ripping out, times of beeps and alarms. At those times, diabetes annoys me, it makes me mad. [Read more…]
D-camp is almost here! This being our second year at d-camp, I thought I’d share some tips I’ve learned.
Non-compliance. It’s a word we hear a lot in the world of T1D. But what does it mean? How can we teach our children to be compliant when it comes to their care? Whether it’s not testing blood sugar, not counting carbs, or not giving themselves insulin, non-compliance can be dangerous. So what can we as parents do to help guide our children to care for their diabetes without becoming overbearing and nagging? [Read more…]