Diabetes has become a part of our lives. Most of the time, it is a nuisance at the most. White noise in the background that we have gotten used to and don’t really notice anymore. But there are other times, times of unexplained highs or lows, times of sites ripping out, times of beeps and alarms. At those times, diabetes annoys me, it makes me mad. [Read more…]
D-camp is almost here! This being our second year at d-camp, I thought I’d share some tips I’ve learned.
Non-compliance. It’s a word we hear a lot in the world of T1D. But what does it mean? How can we teach our children to be compliant when it comes to their care? Whether it’s not testing blood sugar, not counting carbs, or not giving themselves insulin, non-compliance can be dangerous. So what can we as parents do to help guide our children to care for their diabetes without becoming overbearing and nagging? [Read more…]
Chin up. Tomorrow is a new day. It could be worse. At least it’s not cancer. [Read more…]
When he came home from school, I was waiting to look at his meter. I had received a text from the school saying that he had a very high blood sugar level around lunchtime. I couldn’t think off the top of my head why that would have happened. The pump site was fine, his insulin was good, he didn’t have anything out of the ordinary in his lunch. His blood sugar was in range at 10:00 for recess, up to 21.4 by lunchtime (about 385mg/dL), and back down to normal range at 2:00 after his insulin and lunch. So, what had happened? [Read more…]
We recently had a Provincial election here in British Columbia. Here, insulin pumps are covered up to age 25. Prior to the election, at the all-candidates meeting on disability and accessibility, someone brought up the topic of removing the age cap on insulin pump coverage. One of the candidates responded by saying that their party is more focused on prevention of diseases like diabetes. Palm… meet face. [Read more…]
Anything that can go wrong, will go wrong. This could be a mantra of those living with T1D and their caregivers. You have to learn to “expect the unexpected” when T1D enters your life. Have to get to an important meeting? Too bad, low blood sugar strikes! Sending your T1 kid to their first sleepover? You can bet that will be the time Dex stops working. Had perfect blood sugars yesterday? Eat the same things today and… well, you get the point.
This is for you
For the Mama who was up all night fighting highs or lows while her child slept.
For the Mom who slept through the night because she knows if she gets up every two hours, she can’t function the next day.
To the Mama who switched the whole family to a low carb diet to get those straight lines on her child’s CGM in the hopes of avoiding long term damage.
To the Mom who kept her child’s diet exactly the same, and works hard to figure out when to use extended bolusing, adjusted basal rates, or a super bolus.
For you Mama, who went back to work to pay for your child’s medical bills and to support your family.
For you Mom, who quit your job because you couldn’t let a stranger take care of the unpredictable disease your child has.
The Mom who has all the latest T1 tech for her child.
The Mama who lets her child go without the tech because they don’t want it. Respecting their wishes even though a pump or CGM may make her worry less.
To the Mom who has to do every finger poke and injection because her child can’t do it themselves.
To the Mama who is taking a step back, letting her child learn to manage their disease, even if they make some mistakes along the way.
Who has forgotten a bolus, mixed up long-acting and rapid-acting insulins, miscalculated a carb count.
Who has slept through an alarm, forgotten to bring low treatment on an outing, didn’t pack enough supplies for a trip.
To the Mom who put her child in therapy because she was concerned about her child’s mental well-being.
To the Mama who cries at night, still grieving the life her child could have had.
You, who cries with your child, because sometimes diabetes really sucks.
You, who is miles away from your child, yet you still wake up in the night worried about their blood sugar.
Who is on the sidelines, waiting to check blood sugar and give some juice if necessary before sending them off to play some more.
Who educates friends and family so that your child can go to sleepovers and playdates.
To you, Mom, who finds a way to say “yes” when it’s terrifying you to let go.
To you, Mama, who sends her child to camp and on field trips even though it’s scary.
You, who has found your “new normal” and takes it in stride… most of the time.
And you, who is overwhelmed and can’t grasp this ever being normal.
To every Mama of a child with type 1 diabetes
You are doing a good job. More than good. You are doing an amazing job! You have taken the job of being another person’s organ, a job that no one in their right mind would ever want, and you’re figuring it out.
You’re playing nurse, nutritionist, pharmacist, researcher, and therapist more than other Mom’s do.
You didn’t ask for this. But you’re rocking it! Yes, there are some bumps along the road. That’s ok. You’re human.
You are strong, and you are brave. You fight every day to make your child’s life “normal”, to put them first. And they can see it.
You are the expert in your child’s disease. Whichever way you handle it, even if it’s different from how other people do, that’s the right way for you and your family.
Most people don’t understand that T1D is a complicated disease that needs attention 24/7. But you do.
Mama of a child with type 1 diabetes, you are a HERO.
~ With Love from: A Mama who understands
I attended a type 1 diabetes event last week. The event was put on by Diabetes Canada and the keynote speaker was a researcher from Vancouver, BC. She discussed what is happening around the world in regards to islet cell transplants. I found her talk extremely interesting, so I decided to share a summary of the evening with you.
Imagine for a moment, you and I are at the beach. We go swimming in the ocean. We’re having a great time splashing and laughing. All of a sudden, I scream. We get out of the water and you see red marks on my leg. I’ve been stung by a jellyfish! Quick, what would you do? (Stay with me here… we’ll talk about diabetes and the frappuccino in a moment). [Read more…]